Jaxon update, and more.....

We got Jaxon's wheelchair on Friday(3/21). We went up to Fargo and had a fitting appointment for him, and had a couple of appointments for Hayden too. He got to pick out the orange color, which he loves! His doctors have wanted him to get this for quite awhile now, and it has been a long process. They think this will help him be able to get around on his own more. When he is having a flare, and not walking at all, this will be really helpful for him. He will be able to go to school on the days when we would keep him home. Church will be a lot easier too! We had my grandma's 80th birthday on Saturday and he was hurting a ton. He had a really tough weekend, but he was able to get around and hang out with his brothers and cousin. It was good practice too! He is so good at getting around, he is really cautious. The only hard thing is that the other 2 boys have wanted to be on there constantly! We also just found out today that he was approved for his walker too. He should get that next week, which will be great to have. He will use the walker at home mostly and the wheelchair will be more for school, church and other things.

We also had an appointment for Hayden and Jonah in these last few days too. I know, I know...... they just don't end. Hayden had his braces checked in Fargo on Friday, and they looked good. He will be able to be in them until the summer at least. Then he might be able to go down to something a little smaller. We will see what his strength is then. He also had his neurology check-up and he really is doing great! He is on a pain med. that helps his sleep. (we have had a ton of problems with that, and that is one of the residual affects from the Transverse Myelitis) We are also going to get a physical and occupational therapy evaluations to make sure he is on track. He has been sick this week with a cold and a really bad ear infection. We haven't had much sleep at all this week, so that is why this is getting out a little late!
On to Jonah... he has had a lot of pain in his feet lately, which for a long time we just thought was growing. But it wakes him up at night and he has been complaining about it often, so a couple of months ago, I brought him in. They looked at his heels and they are both turned in. That is the cause of the pain, so today he was casted for orthotics that will just slip into his shoe. It will just even out his feet and help him feel much better. I guess he just didn't want to be left out!!
Well that is the scoop right now! This blog is a great way to be able to share with all of you what is happening in our lives! Thanks to all who think and pray for us!! I will post more pics of Grandma's b-day later!