Jaxon and Hayden's Medical Story

Tuesday, March 31, 2009

Just so you know.....

I am not changing my blog background a ton, just because.......
I wanted to find something a little more on the boy side, and went with the frogs one day a couple of weeks ago. Well, since then Jeremy has been asking me constantly, if I would give up the frogs!! I don't know why he didn't like it at all, but that's what brings us to the sports theme, which I guess, is more like my family anyways! Someday, I might just have to put some girly stuff on here just to see if I get a reaction too!
Anyways... since I don't want to do a whole other post, here are some pics of Amber's (soon to be my sis-in-law) birthday. We had the Knick's, Nathan, Amber and her mom Barb over for supper and dessert, on Saturday. We had a blast,
and it was a great way to get to know Amber and her mom a little more!



Jaxon and Jonah being as silly as always!!

Monday, March 30, 2009

Grandma's 80th Birthday

Here we all are....this picture turned out so good! We all are looking at the camera and have our eyes open. That is pretty good when you have 6 younger kids around!! We had a Big Birthday Bash for my Grandma Rogness last weekend. She had such a fun time and I'm sure loved having all her kids and their families there! We started off at the Light and Life Auditorium, where there was an open house. Then the "adults" took Grandma to out for dinner, while the rest of us hung out at my mom and dad's and had pizza! When they got back we had desserts (my mom's, which were a hit!!) and opened gifts! It was a great day with Grandma and the rest of the family!!
I love you Grandma!!
Great Grandma!
I cropped the big picture of us because it was such a great one of our family!!
Opening gifts at Mom and Dad's
Jonah loves to play with his Grandpa!!
My handsome nephew, Matthew!
She got lots of really nice gifts and cards, but the best gift was a book of pictures! It had old pics of the kids growing up, pictures of Grandma and Grandpa 's wedding, and pictures of each of her children and their families! Plus many more! It turned out great thanks to Caristy, Marcheta, and Jewel! You did a great job guys!!

The party at Light and Life....
her cake and flowers
Grandma and her kids.
Dad and Mom with Grandma.

The cousins! They are all so cute!!



Jonah, Hayden and Matti walked around almost all afternoon like this, holding hands, with Jaxon wheeling along too!

Wednesday, March 25, 2009

Jaxon update, and more.....

We got Jaxon's wheelchair on Friday(3/21). We went up to Fargo and had a fitting appointment for him, and had a couple of appointments for Hayden too. He got to pick out the orange color, which he loves! His doctors have wanted him to get this for quite awhile now, and it has been a long process. They think this will help him be able to get around on his own more. When he is having a flare, and not walking at all, this will be really helpful for him. He will be able to go to school on the days when we would keep him home. Church will be a lot easier too! We had my grandma's 80th birthday on Saturday and he was hurting a ton. He had a really tough weekend, but he was able to get around and hang out with his brothers and cousin. It was good practice too! He is so good at getting around, he is really cautious. The only hard thing is that the other 2 boys have wanted to be on there constantly! We also just found out today that he was approved for his walker too. He should get that next week, which will be great to have. He will use the walker at home mostly and the wheelchair will be more for school, church and other things.
We also had an appointment for Hayden and Jonah in these last few days too. I know, I know...... they just don't end. Hayden had his braces checked in Fargo on Friday, and they looked good. He will be able to be in them until the summer at least. Then he might be able to go down to something a little smaller. We will see what his strength is then. He also had his neurology check-up and he really is doing great! He is on a pain med. that helps his sleep. (we have had a ton of problems with that, and that is one of the residual affects from the Transverse Myelitis) We are also going to get a physical and occupational therapy evaluations to make sure he is on track. He has been sick this week with a cold and a really bad ear infection. We haven't had much sleep at all this week, so that is why this is getting out a little late!
On to Jonah... he has had a lot of pain in his feet lately, which for a long time we just thought was growing. But it wakes him up at night and he has been complaining about it often, so a couple of months ago, I brought him in. They looked at his heels and they are both turned in. That is the cause of the pain, so today he was casted for orthotics that will just slip into his shoe. It will just even out his feet and help him feel much better. I guess he just didn't want to be left out!!
Well that is the scoop right now! This blog is a great way to be able to share with all of you what is happening in our lives! Thanks to all who think and pray for us!! I will post more pics of Grandma's b-day later!


Saturday, March 14, 2009

Once again....Hair----No hair!!

The before pic!!
Jonah has been begging me for a few days now to shave his hair like daddy! He just wouldn't give it up, so daddy gave in! He has been particularly sensitive to what Jesse is going through. He is always wanting to pray for Jesse and wanted to be like dad and support Jesse by shaving his head! It was pretty cute!! Hayden wanted to join in the fun too, but Jax decided to keep his hair!
Here we go, with Jonah!

This is a good look! We can use this later in life!

All done!

Here goes Hayden
!
Again, a good look!

All done with #2


Aren't they cute together???


The finished product!

Monday, March 9, 2009

A Colorado Wedding!

We started our trip out with a crazy landing into Denver! It took us an hour more to get to the ground, because we had to pull up twice to try another approach. The wind was nuts, it was making us go everywhere. We could see the shadow of the tail of the airplane on the right wing, that is how sideways we were! There were a lot of people throwing up, the guy in the isle next to us made it hard not to do the same! But we got down and had to start the 5 + hour drive to Grand Junction,where we stayed the nigh,t so we could pick up Jer's tux the next morning. It was hard to drive in the mountains! Way harder than the flat land of MN/ND!! but it was beautiful!!



Here is Jeremy as we were starting our trip in Denver! Pre-haircut!!
Us just hanging out at the hotel, being weird with the camera!
Jesse and Jeremy at the Wedding rehearsal
Jeremy and I right before the wedding, during pictures! He looked so handsome!
Here is Jeremy and I at the reception. The groomsmen wore white shirts with black suspenders for the wedding and black shirts and white suspenders at the reception! It looked really good!
The bride and groom at the reception!
Jesse and Jeremy
Isaac, Jesse, Jeremy and Josh
These were all the guys from Minnesota!
Jesse and Rochelle at their first dance
The party table at the reception
The groomsmen
The bridesmaids
Josh, the best man, giving the first toast

Jeremy had a few words to say too!
Cutting the cake!
The ushers with Jesse and Rochelle
Jodie Jensen and I