Jaxon and Hayden's Medical Story

Friday, February 13, 2009

Another trip to Rochester!

Jaxon was being pretty silly here in the room waiting for Dr. Mason! He loves to lay on the table and watch TV.
Both Hayden and Jax got to see Jaxon's Dr. on this trip. Dr. Mason was the one referring Hayden to see a neurologist and rehab medicine.


We have been meaning to get a pic of Dr. Mason and Jaxon for so long! He is one of the nicest guys that I have met and has helped us out a ton! Plus Jaxon loves him! He is wonderful with Jax!
The boys had a blast running off some energy from waiting around the clinic!



The scoop......

We had a few appts. for the boys this past Monday and Tuesday in Rochester and had some weather problems so we left Sunday afternoon. It seems like there is always some kind of weather issue that I have to worry about, which is annoying to have to think through! It was a good thing we left on Sun. or we would not have made it in time for the double appt. to see Dr. Mason. Grandpa Matt and Grandma came with us to help me out with the boys since I had both of them at appts. that overlapped. Grandpa drove, which took alot of stress out for me!! Dr. Mason was referring us on for Hayden and just checking up on Jaxon to see how things were going after his injections. Jaxon has had a couple of good weeks so we are starting to taper off his steroids to see if he can start growing again! He is really blessed to have a Dr. that really knows what is going on and is so concerned about the rest of us and what he can do to help us out! We stayed at G&G Knick's on Monday night and had lots of fun! Then we had to wake up really early for a CT scan for Jaxon at 8am. He did great and even had to get an IV, which for him is a huge deal, but it went really well. He does have some inflammation around his rectum, which isn't real bad but we are starting a med that will help that hopefully!! He had some blood work,saw his GI Dr. and was done for the day, only to wait for his brother, who had some more appts.
I have been wanting a second opinion in Hayden for awhile now, so we saw a neurologist and a rehab Dr. to make sure he was doing alright and that we were doing everything right for him now. They both said that he really is doing good and has recovered great! He does have things that we just need to watch, like his bladder and bowels. Also he could have eye issues that we have to keep regularly checking, but all in all it was confirming for me and that is priceless these days!
We didn't get home until 10:30pm on Tues. night and were up early driving to Wheaton to get ready to move. We met the movers at our house at 10am and hung out at our friends house until they were done loading up. The boys had a blast with the kids and I got to visit and catch up with Starla, who I miss a lot! Thanks Tekrony's, we miss you!! Then we followed the truck to Ashby and directed where things were to go. It was a really long, but fun day! The 2 boys did so good!!
On Thursday mom and I went to our house and unpacked about 30 boxes, mainly kitchen stuff. We got a lot done while Jaxon and Jonah were at school. Then Jeremy and dad set up all of our beds and unloaded yet some more stuff!
That brings us to today, which was the big closing day!! We are now owners of the house, and we'll be staying there tomorrow night, if I can get everything packed and cleaned at mom and dad's. How did so much stuff accumulate in 6 months?? It has been a huge week and we are all so tired! Mom and dad have been helping us out and working like crazy too, so they will be able to crash alone this weekend! And I'm sure they will enjoy it, but it might be too quiet for them!?? Maybe not!! I know the boys will miss them a ton, but now we are only 20 min. away!! I probably won't be able to update this for awhile, until we get our phone and stuff set up, but I will take more pics and post them asap!! Thanks for all of your thoughts and prayers!

2 comments :

CJ Olson said...

Thanks A for the update! Glad that Jaxon is doing okay and that Hayden is too!! Woo hoo for being in your house!! That's just awesome! I hope that you guys enjoy living in your new house!! We love you!!

The Erickson Family said...

What a fun update this was! So glad to hear the good reports for the boys!

I'm excited for you about the new house. What wonderful memories you will make there!