Jaxon and Hayden's Medical Story

Monday, October 19, 2009



Welcome to Not Me! Monday! This blog carnival was created by MckMama. You can head over to her blog to read what she and everyone else have not been doing this week.


I really didn't let my children go outside (only from the house to the van, in the garage), in their shorts, crocks and winter coats. I would never allow them to go outside, in almost nothing, when it is 45 degrees outside. Nope not me.....but it really felt like a heat wave!!

I did have a coat and pants on today, when we went to drop Jaxon off at school, but it was the same thing I wore to bed. So, it wasn't me, who dropped off our heat payment in my pj's, having done nothing to my hair. I always go out looking perfect, yeah right!

And I most certainly did not let my 2 youngest have peanut butter cookies for breakfast. Nope that wasn't me, I always start the day off with a healthy breakfast, cause it is the most important meal of the day! (I just couldn't resist letting them this morning, because they made those cookies with Grandpa Kervers yesterday, and were so proud of them!)

Monday, October 5, 2009




Welcome to Not Me! Monday! This blog carnival was created by MckMama. You can head over to her blog to read what she and everyone else have not been doing this week.


Well, I certainly did not walk, with my children, up to school (which is right up the hill), in the pouring rain, to watch Monday Night Football. Nope not me, I wouldn't drag my boys up there in the cold and rain, just to watch a little bit of the Big Game. I would be responsible and stay home in our warm, dry home, and listen to the game!

I didn't laugh like crazy, the other day, when my youngest asked one of the funniest questions that I have heard, since becoming a mom. I will tell you the whole story.....first, Hayden has been hurting in the private area, for awhile now. Because of all he's been through, we have had keep and eye on things, and not let things go too long. Second, he also had a dentist appointment this last week too, so that is the set up for our conversation.....Hayden--"Mom, are we going to the dentist?" Me--"No, we are going to make sure your pee pee is okay." Hayden--" Oh, so we are going to a pee pee appointment?" Me--"Yes, I guess." Hayden--"So then Mom, are there going to be pictures of pee pee's at the pee pee appointment?" Me-- no comment, cause I was laughing too hard! NOPE, it was not I who continued to laugh, for way to long, instead of keeping quiet, so my son didn't think he was so funny!! It did make sense, cause in the dentist office, there are tons of pictures of teeth. So really why wouldn't he think he would see the other pictures??

Behind again.....

I am so late on this again, and I am sorry! I should have posted right after we got home, but life was just too crazy. So here we are, a week and a half after his appointments, but I guess it is better than nothing.
Jaxon's appointments were all pretty good, nothing really new or exciting, which is good. We left right after school on Thursday, and got to our hotel around 9pm. Jaxon really wanted to go into the hot tub, so he and I did that, while Jeremy worked out.
We had to be @ Mayo at 7:15am for his injections, which went well. He woke up really fast, and felt pretty good (he's getting use to this by now!!). Dr. Mason put cortisone in both wrists and both knees, he also took some fluid out of both knees, too. We saw Dr. Mason later in the day, he wasn't thrilled with the fact that Jaxon hasn't grown at all, for a while now. He has been on a really low dose of steroids for a while now, and we were hoping that he had stretched a little. He also is on the highest dose of almost all of his medications, and we aren't seeing much from any of them. They are all acting kinda like a band aid, keeps the real bad stuff away, but isn't doing a whole lot to put out the fire. We will just see how it goes these next few months, and take it from there. There is the (sort of) bad news, but there was some good news. Dr. Mason did tell us about a new drug, that hasn't even been released yet. He is going to a convention about it in the next few weeks, and we are hopeful it will be something to help Jax, even more. It is given through an IV, so that will be very different, and it is especially made for Jaxon's type of JRA (Systemic onset). The other good news, that we didn't know until this week, is that the cortisone shots in his knees worked really well. He has been feeling less pain, and they are starting to look like normal knees. Lately they have been so huge and swollen, they are bigger than his thighs, which looks so hurtful! So that is a big YAY for Jax right now!
When we go back this winter (probably in Jan.), we will be seeing an endocrinologist, to get them in the loop about his growth. They probably won't do anything until 4th or 5th grade, but we need to have them in on this, to make sure we are doing everything we can for him. We will also do any injections that he needs, these injections will be a regular thing for him now. By doing these, he won't have to go up on steroids, therefore he will have more chance to grow.
That's about all from his appointments, we didn't get home until 9pm or so, because of traffic....it was horrible! Thanks to all of you who prayed for Jaxon, we are so blessed to have you and God, on our side! My volleyball team prayed for him at their game on Thursday, and dedicated their game to him, he felt pretty special!!!