We were SO happy to have Jaxon feeling good for about a week and a half, but that came to an end this weekend. His left knee started to hurt on Friday, and Saturday was his friend Bobby's birthday party. Because he was so excited for this, and knowing he was gonna hurt more in the days to come, we all decided to just have him "live a little", and play as much as he could. He played a little basketball, and ran around after supper with his friends having pine cone and dart war fights. It was good to see the smile on his face. But of course it didn't last long...he was basically not moving at all on Saturday night and Sunday. We were hoping to some school this week, maybe even a couple half days, but he has been getting worse as the week has gone on. He isn't sleeping too well cause it hurts to lay still for too long, it hurts to walk, and hurts to just sit still for too long. Any way you put it, he is in pain :( It has started traveling into his fingers, wrists, neck and back. So far this time, it is mostly the left side (which is weird, because it is usually the right side all of the time).
Anywho...we are gearing up for a big week coming up! We have Jonah and Hayden's Spring Concert at school on Tuesday night, we will be leaving right from there and get to the cities to sleep. Then wake up and head the rest of the way to Rochester, for his 2 appointments on Wednesday (including another spinal tap), and some more appointments on Thursday. Hopefully we can make it home at a decent time on Thursday night.
That's all for now, just wanted to give a little update! Thanks for all of you for your continued prayers and encouragement!
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