Jaxon and Hayden's Medical Story

Monday, April 28, 2014

It's a roller coaster ride!

When I look back to all that our family has been through in these last few years, the only word that comes to mind is roller coaster...and it still seems to be that we are are riding it. We all have had a rough last few months, Jax having to actually go through the issues that have been playing havoc on his body, but also the rest of us who have had to watch him!
 This last week has been a great week for him, considering where he was in the middle of January! He had been in a bad flare, hardly moving around because of pain (especially in his right hip). But this last week he has hardly had any pain in his joints...which is kinda crazy considering he is on NO medication right now, and the icky weather we have been having NON stop! His eyes are brighter, and has more energy than he usually does. He was up at school for his hour of tutoring all 4 days last week, and this morning he is trying the morning up at school!! Of course this doesn't come easily, he is very anxious about going, it takes long talks and lots of encouragement to get him up there, but he is DOING it, and we are all encouraged by this! It would be so great if he could at least get in a few hours a day just for his psyche. I can't imagine what starting 6th grade next year would be like for him, having missed 3-4 months of 5th grade. Talk about being anxious!! We are making sure we don't take this for granted, trying to just enjoy this up swing for him and helping each other not worry about the future. That is a hard thing to do sometimes, especially for me...I feel like I am always preparing myself for the next wave, when I need to relax in the good times and be thankful for them. God knows when we need the break, and He also wants us to trust in Him for the future! 
I want to thank each of you for the constant prayer, he is where he is today because of the wonderful people in his life praying for him. We have awesome support from our family, church, Ashby community, and friends! 

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