I am trying to be better at updating this, but it's hard on a week like this!
Jaxon has had a rough couple of days, and it takes a ton of energy out of him, as well as the rest of us. We've got him down to 2 ml's of steroids, we also went up on his Kineret shot. That way, we were hoping to stay lower on the steroids, so he could grow some. But it doesn't seem to be helping. It always starts off looking like it is working great, but then he'll have a big flare, like the one he's been having since Thursday night. He is running a 103.5 deg. temp today, which zaps him of everything! This flare is a really long one, usually he has it for a couple of days, then breaks out, but not this time. He has missed school Friday, Monday and today. He is pretty sad about it too, especially today, because he has his big field trip tomorrow. He knows that if he feels like this, he wont be able to go! He has been looking forward to going for a long time, plus his dad is going too! Would you pray that he would feel good enough to go tomorrow?
We are also going to the Dr. today for a pre-surgery check. Jaxon has a hernia that we need to deal with. We are hoping that we can wait until school is out, but it's making it hurt to go to the bathroom, so I'm not sure we will be able to wait. We are a little nervous about surgery, because of all the meds. he is on, and how he will recover, even though it is a pretty common surgery. Will you pray that the Dr.'s make the right decisions for Jax?
We go to see Dr. Mason on Friday, which will be good. We will be able to see what else we can do for Jaxon and see what he says about his hernia. We just have that one appointment, which is awesome! I makes for a quick trip.
What's crazy is that we come back to the last full week of school! Their last week is short because of Memorial Day, then they get out @ 1pm on Friday the 29th. I can't believe that they are almost done, we are all looking forward to summer!
I will update again after our appointments this week. Thanks for all of your prayers, I know that's why Jaxon has made it through what he has already! God is always there, even when things seem impossible.
Jaxon has had a rough couple of days, and it takes a ton of energy out of him, as well as the rest of us. We've got him down to 2 ml's of steroids, we also went up on his Kineret shot. That way, we were hoping to stay lower on the steroids, so he could grow some. But it doesn't seem to be helping. It always starts off looking like it is working great, but then he'll have a big flare, like the one he's been having since Thursday night. He is running a 103.5 deg. temp today, which zaps him of everything! This flare is a really long one, usually he has it for a couple of days, then breaks out, but not this time. He has missed school Friday, Monday and today. He is pretty sad about it too, especially today, because he has his big field trip tomorrow. He knows that if he feels like this, he wont be able to go! He has been looking forward to going for a long time, plus his dad is going too! Would you pray that he would feel good enough to go tomorrow?
We are also going to the Dr. today for a pre-surgery check. Jaxon has a hernia that we need to deal with. We are hoping that we can wait until school is out, but it's making it hurt to go to the bathroom, so I'm not sure we will be able to wait. We are a little nervous about surgery, because of all the meds. he is on, and how he will recover, even though it is a pretty common surgery. Will you pray that the Dr.'s make the right decisions for Jax?
We go to see Dr. Mason on Friday, which will be good. We will be able to see what else we can do for Jaxon and see what he says about his hernia. We just have that one appointment, which is awesome! I makes for a quick trip.
What's crazy is that we come back to the last full week of school! Their last week is short because of Memorial Day, then they get out @ 1pm on Friday the 29th. I can't believe that they are almost done, we are all looking forward to summer!
I will update again after our appointments this week. Thanks for all of your prayers, I know that's why Jaxon has made it through what he has already! God is always there, even when things seem impossible.
4 comments :
A....I'm so sorry!! I'm praying that Jax feels better and that everyone will be able to get some rest. I also hope that the hernia surgery will go well!! HUGS and prayers going to you and your family!!
You guys are in my thoughts & prayers! I pray that this flare comes to an end and that he can go on his field trip!
thinking and praying for you... i'm so sorry it's been so rough. I'll be praying hard that he can go tomorrow! love you and miss you tons~!!!
We'll be praying for Jaxon and you guys! Keep us posted!
Post a Comment